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Data and anonymised case vignettes from the study: Judgements about carer assessments for carers of people with dementia

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posted on 2024-03-28, 10:57 authored by Paul ClarksonPaul Clarkson, Asif Butt, Baber Malik, Ruth Eley, Cecilia Toole, Caroline Sanders, Ian Sheriff

UK carer assessments, in primary and social care, intend to discover what carers require in their caring roles and more widely. Evidence points to these not being configured sufficiently around carers of people with dementia, with potentially their breadth of needs not being recognised. We evaluated the extent of agreement, between carers of people with dementia, primary care, and social care professionals, on their recommendations from assessing carers’ needs in a range of circumstances. The findings from this are to be taken forward as recommendations for policy and practice. Here we present the anonymised case vignettes, designed by carers, for use in this study to rate carers, health service and social care professionals' judgements about the needs of carers. Also presented are the datasets to perform analyses of these judgements, using Fleiss’ kappa coefficients to measure the level of agreement amongst multiple carers, primary and social care staff and overall.

Funding

National Institute for Health and Care Research School for Social Care Research on behalf of the NIHR ‘Three Schools’ Dementia Research Programme [Ref:102645/3SDRP/UMPC-DP03]

History

Research ethics approval number

2022-14569-26301

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